Sladjana Rumpl Tunjic
Sladjana is a member of the PARE Committee and a participant in various EULAR and PARE projects. Sladjana has been volunteering for PARE for several years while volunteering for her national organisation: Association Remisija in Croatia. Sladjana has advocated for ensuring appropriate therapy for all patients with rheumatic diseases (RMDs), and for raising awareness of children and young people with RMDs.
| Oral 0102 | Wednesday 12.06.2024 17:30 PM Abstract Plenary (Oral Abstract Presentations) Author: Beesley, R (UK) Title: Novel And Innovative Approaches To Raising Awareness Of Childhood Arthritis  Raising awareness that children and young people get arthritis is a vital step in reducing delays to diagnosis and reducing the burdens of isolation, loneliness and stigma. |
| Oral 0333 | Saturday 15.06.2024 12:40 PM Exploring Self-Management: Definitions and Life Author: Clark, Z (UK) Title: Online Patient Education For Axial Spondyloarthritis Self-management It is important to have online videos available with downloadable resources. This can be an effective way to educate people living with axial spondyloarthritis about the condition and share self-management techniques. |
| Oral 0312 | Friday 14.06.2024 11:40 AM PARE Abstract Session: From Abstract to Concrete – the Variety of Activities of PARE Organisations Author: Karakikla-Mitsakou, Z (UK) Title: Lupus100 Insights: The Key Questions That Patients Search On Lupus100.Org The data from Lupus100.org allow for the shaping of therapeutic patient education, based on the actual questions that patients have. Continual monitoring of the Lupus100 site will help gain further insights to tailor communication efforts to evolving patient needs. |
| Oral 0205 | Thursday 13.06.2024 14:31 PM Working with an RMD: Make RMDs Work Author: Bakker, N (Netherlands) Title: Work-related Support For (Self-)employed People With Rheumatoid Arthritis Or Axial Spondyloarthritis: The Workers’ Perspective To improve work participation, more attention from rheumatologists, other healthcare professionals and employers is important to identify and address work-related problems promptly. |
| Poster 0183 | Thursday 13.06.2024 12:48 PM PARE Poster Tour III Author: Clausen, J (Germany) Title: Supporting Patients Involved In The Preparation Of Medical Guidelines Training and continuous support by patient organisation is important for patients in order to guarantee their continual, valuable and successful involvement in the preparation of medical guidelines. |
| Poster 0076 | Thursday 13.06.2024 09:42 AM PARE Poster Tour II Author: Bosworth, A (UK) Title: Development Of A Self Management Module On Importance Of Physical Activity And Exercise In Rheumatoid Arthritis The ability to self-manage in inflammatory arthritis represents an essential component of care that goes beyond drug therapy. Self-management is a multi-component complex intervention. |