Sladjana Rumpl Tunjic
Sladjana is a Member of the PARE Committee and Member of different EULAR and PARE Subcommittees. Sladjana has been volunteering for PARE for a years while volunteering for her national organization – Association Remisija in Croatia. Sladjana has advocated for ensuring biological therapy for all RMDs patients and raising awareness of children and young people with RMDs.
| Type, n° | Date, time | Session | Author | Title |
|---|---|---|---|---|
| Oral 0009 | Wednesday, 31.05.2023 15:07 – 15:17 | “Buy one – get 4 free” – RMDs and comorbities | Campbell, L (UK) | CREATIVITY AND CO-PRODUCTION TO SUPPORT PEOPLE LIVING WITH CHRONIC PAIN WITH THEIR MENTAL HEALTH |
| A lot of people facing living with chronic pain and it have impact on their mental health. That’s why this is area of great importance for people living with RMDs. | ||||
| Oral 0093 | Wednesday, 31.05.2023 17:32 – 17:42 | Let’s talk about biomarkers – ask the experts | de Groot, P (Netherlands) | DISCOVERING THE POTENTIAL VALUES OF DIGITAL BIOMARKERS FOR INFLAMMATORY ARTHRITIS PATIENTS, A DESIGN THINKING APPROACH PRELIMINARY RESULTS OF THE PATIENTS’ PERSPECTIVE |
| It is important to understand the role of biomarkers in RMDs and discuss the importance on the diagnosis and treatment of RMDs under the patients’ perspective. | ||||
| Oral 0183 | Thursday, 01.06.2023 11:32 – 11:42 | 0 – 100 in 75 minutes; RMDs have no age | Ankeny, U (UK) | CO-DESIGNING JIA TOOLBOX: A PROOF-OF-CONCEPT STUDY ASSESSING PROTOTYPE INNOVATIONS TO HELP SELF-MANAGEMENT IN CHILDREN AND YOUNG PEOPLE WITH RHEUMATIC DISEASE |
| Children and Young people with JIA or other inflammatory diseases need devices to help them with daily activities. This topic is important for all of them but also for their parents, healthcare professionals, friends and teachers. | ||||
| Oral 0303 | Saturday, 03.06.2023 09.57 – 10.07 | DATA MATTERS: keeping track of your health information | Silva, M (Belgium) | MULTI-STAKEHOLDER CO-CREATION TO FACILITATE CLINICAL TRIAL RECRUITMENT – A FEASIBILITY STUDY |
| There is not much communication about clinical trials towards the patient population and there can be a lot of misconceptions around clinical trials. Because of it, it is important to bring this topic to the front. | ||||
| Oral 0307 | Saturday, 03.06.2023 11:32 – 11:42 | “So what now?” – living and planning life while co-existing with an RMD | Van Steensel–Bonn, A (Netherlands) | WHAT ARE THE UNMET NEEDS OF PREGNANT PATIENTS DIAGNOSED WITH INFLAMMATORY RHEUMATIC DISEASES RECEIVING CARE IN A HIGHLY SPECIALIZED REPRODUCTIVE RHEUMATOLOGY CENTER? THE RESULTS OF THE CAPRI STUDY |
| It is important to understand and improve care if there are unmet needs of pregnant patients with RMDs. | ||||
| Poster 0202 | Friday, 02.06.2023 12:15 | PARE Poster Tour 2 | Fryxelius, A (Norway) | CHRONICALLY ACTIVE – A PATIENT EMPOWERMENT PROGRAM WITH PEER SUPPORT |
| Any intervention that improves self-management can help people with RMDs to lead healthy and active lives despite chronic illness. | ||||