Author: Sladjana Rumpl Tunjic
Laura Campbell et al. (OP0009) explored if living with a long-term health condition can increase the likelihood of experiencing poor mental health. Having access to high-quality resources to raise mental health awareness and support good mental health among this population is crucial. Co-production of patient-facing resources with people with lived experience of health conditions has been acknowledged as an important way of achieving impact and engagement.
Patty de Groot et al. (OP0093) presented obtaininig the patients’ insights on disease activity, disease management and care needs; and to empathise with their attitude towards digital biomarkers in order to obtain future directions for digital biomarker development.
Ursula Ankeny et al. (OP0183) evaluated the potential impacts of JIA Toolbox in improving independence and functional ability of Children and Young People (CYP) with JIA. Idea was to provide contemporary data on CYP’s experiences of living with JIA to inform future innovation.
Mitchell Silva et al. (OP0303) analysed a feasibility study which has been performed to develop a clinical trial portal that allows users to search for trials in a local and lay language, while offering the portal to patient organisations and hospitals to receive updates on newly initiated trials.
Anna Fryxelius et al. (POS0202) presented a project where confirmed that peer supported intervention organized by a patient organization has potential to help people with chronic pain and rheumatic conditions return to work life and lead healthy and active lives despite chronic illness.
Cláudia F. Gomes et al. (POS0197) presented educational summer camp and impact in children and teenagers with juvenile rheumatic musculoskeletal diseases. She also analysed data to show that the educational camp had positive impact on the patients with better adherence and better self-management.
Patricia Pennings et al. (POS0194) evaluated a project to encourage shared decision making that is now available in several languages. Making a medication choice together with the healthcare professional stimulate both; the patient as well as the healthcare professional to share much-needed information, when making a choice in medication.
Anneke van Steensel–Bonn et al. (OP0307) evaluated the unmet needs of women diagnosed with inflammatory rheumatic diseases that received highly specialized care in a tertiary Reproductive Rheumatology center. The care provided was highly rated by the majority of the women. Nevertheless, some of them experience health problems that remain unsolved and this will help to improve patient-centered care.
Sladjana Rumpl Tunjic
Sladjana is a Member of the PARE Committee and Member of different EULAR and PARE Subcommittees. Sladjana has been volunteering for PARE for years while volunteering for her national organization – Association Remisija in Croatia.
Sladjana has advocated for ensuring biological therapy for all RMDs patients and raising awareness of children and young people with RMDs.