Simon Stones
Simon Stones, PhD, is a Global Patient Engagement Leader, Medical Communications Specialist, and internationally recognised patient advocate from Manchester, UK. Living with rheumatology and gastroenterology conditions, and with caregiver experience in neurology and oncology, he brings personal insight to his professional and voluntary work.
Simon has over a decade of experience involving patients and carers in healthcare services and research. He currently serves as Chair of the EULAR PARE Committee and has been actively involved with EULAR (including EMEUNET) since 2014. He works in the biopharmaceutical industry, helping medical affairs teams embed meaningful patient engagement into their activities. He has published widely on patient engagement in research and self-management of long-term conditions.
| Poster PP01 | Sunday, 26.10.25 | 10:30 (PP01-PP08) Patient Perspectives Poster Presenting author: L. Guentzel (MN, USA) Title: When You Become the Story: A Journalist’s Approach to Managing Complex Care  This poster is part of ACR’s ‘Patient Perspectives’ poster session, and reports the lived experience of Lindsay Guentzel, a journalist who was diagnosed with dermatomyositis, antisynthetase syndrome, and Sjögren’s disease in 2023. |
| Poster 0361 | Sunday, 26.10.25 | 10:30 Patient Outcomes, Preferences, & Attitudes Poster I Presenting author: M. Chan (Canada Title: Transition in Focus: Health Care Utilization and Disease Status in Youth with Connective Tissue Diseases—A Single-Center Experience in British Columbia, Canada This study assessed outcomes of a structured transition program for young people with connective tissue diseases moving from pediatric to adult care, showing that structured transition can help maintain continuity of care. |
| Oral Presentation 0792 | Sunday, 26.10.25 | 13:45 Abstracts: Patient Outcomes, Preferences, & Attitudes (0789–0794) Presenting author: T. Chiha (MA, USA) Title: Real-World Assessment of Glucocorticoid-Induced Skin Toxicity in Individuals with Rheumatic Diseases This study assessed how often and in what ways glucocorticoid therapy causes skin-related side effects in people with RMDs, underscoring the need for regular monitoring to reduce treatment-related harm. |
| Oral Presentation 0794 | Sunday, 26.10.25 | 14:15 Abstracts: Patient Outcomes, Preferences, & Attitudes (0789–0794) Presenting author: R. Boers (NY, USA) Title: Using Artificial Intelligence to Analyze Multilingual Qualitative Data in Lupus Pregnancy Research: A Proof of Concept with Large Language Models This study assessed whether large language models (LLMs) could analyze non-English qualitative interviews from women with lupus about pregnancy. |
| Poster 1263 | Monday, 27.10.25 | 10:30 Patient Outcomes, Preferences, & Attitudes Poster II Presenting author: C. Calomarde-Gomez (Spain) Title: Health Literacy Diversity Among Rheumatology Patients: Insights from a Tertiary Rheumatology Centre This study assessed the range of health literacy profiles among patients with RMDs, identifying distinct subgroups with varying strengths and support needs. |
| Poster 1257 | Monday, 27.10.25 | 10:30 Patient Outcomes, Preferences, & Attitudes Poster II Presenting author: S. Teaw (TX, USA) Title: Integrated Behavioral Health Services for Patients with Rheumatic Diseases: Qualitative Analysis of a Pilot Study This study assessed patient and clinician experiences with embedding behavioral health support directly into rheumatology care, paving the way for broader integration of mental health services. |
| Poster 1259 | Monday, 27.10.25 | 10:30 Patient Outcomes, Preferences, & Attitudes Poster II Presenting author: A. Gaffo (AL, USA) Title: Patient and Caregiver Perspectives on the Burden of Disease in Uncontrolled Gout: A Cross-Sectional Survey Study This study assessed how uncontrolled gout affects both patients and their caregivers, revealing major impacts on physical health, daily activities, and work productivity. |
| Poster 1248 | Monday, 27.10.25 | 10:30 Patient Outcomes, Preferences, & Attitudes Poster II Presenting author: A. Ali (IL, USA) Title: Patient and Clinician Perception and Use of Complementary and Alternative (CAM) Medicine for Rheumatic Disease This study assessed patient and clinician attitudes toward complementary and alternative medicine (CAM), finding widespread patient use but limited accessibility, alongside strong clinician interest in integrating evidence-based CAM into routine rheumatology care. |